Boring but …

Listening to the minutiae of someone else’s child’s preferences, likes, dislikes, wills and will nots is excruciatingly dull. However, what emerges from beneath this litany of dull detail is enlightening, reassuring and makes me grateful for the likes of Steph and Chris Curtis in our midst.

These two are saints and they are trailblazers. They have raised not only two children but also nationwide awareness and understanding of the presentation and needs of youngsters with these diagnoses.

I was amazed at how boldly Steph expected Sasha’s needs to be met by her carers and schools: I am always ashamed to ask. From now on I will take inspiration from Steph’s lead and will state my two ND kids’ needs without shame or embarrassment that I’m asking for too much or the feeling that maybe they’re, “not that bad”.

There are also lots of pointers to good resources. I’m already fully involved with Dr Ross Greene’s ideas, but haven’t tapped the PDA Society fully.

Thank you Steph, for documenting your life’s ups and downs and sharing the lessons you’ve learned along the way.

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Knowing we are not alone!

Steph comes across as a methodical mum trying to explain that PDA is something that can be managed (sometimes), when we as a family are struggling to understand and work out how to! It was helpful knowing we are not alone!
Towards the end of the book the PDA and ADHD link especially resonated with us and I think more of this subject would be interesting if Steph follows a diagnosis for her daughter.

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1 person found this helpful

Amazing!!

This book has given me hope again that we are not alone in the journey with our pda young people. I can’t thank you enough.

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Amazing

Amazing content, really highlighting the experience of having PDA in the Family. This is so well written, and it would be great if every professional in education read it. It could give such valuable insight into our children’s inner thoughts, feelings and drives, as well as what the world is like from our perspectives. I can’t praise this highly enough.

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Real life experience so valuable

This is a brilliant real life experience of a family who have had their personal challenges and have generously shared to enable others to gain insights that will support children and families in their daily lives. Thank-you so much for this ‘unknown’ aspect of the wide spectrum of autism, hugely appreciated

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A very honest account of life with PDA

I listened to this book and wanted to go straight back to the beginning to start again. I have seen so much of our family in what she writes, and it often made me emotional hearing this. Thank you for reminding me that we aren’t alone.

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Finished in 2 days

This book was educational and so insightful but also so well written and read it was pleasurable to listen to which I wasn’t really expecting. I genuinely couldn’t put it down. It made things in my family make so much more sense for me, but I also wanted to know more about their family’s story. Thank you.

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super informative and reassuring

As a mum of an ADHDer and suspected ASD this book made so much sense to me. I'd been struggling with the fact that whilst ADHD and ASD explained alot of what was going on with my youngest that there was something else going on too. I now understand PDA so much better and it has helped me to give myself an easier time about my adapted low demand parenting style.

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Honest and heartfelt.

This book is such a fantastic glimpse in to what it’s like to live with someone with PDA.
A joy to listen to and so well written. There were many parts that I related to and that’s a rare but wonderful feeling 💗

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Relief

I found this book a great support, being both informative and heartfelt.
The compassion displayed by the parents is a credit and evidence of their resilience and understanding. The experience they courageously share has been a relief for me as a neurotypical parent of someone who faces challenges I often struggle to understand and indeed accept.
Much appreciation to all the Curtis family for this ‘gift.’
Thank you
W

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